To my beautiful boy,
You look so peaceful curled up in
your bed tonight little man, it’s like the events of the day have washed over
you with no ill effects at all. Your face shows no sign of the meltdown you
endured earlier in the day. But as I stand here watching you dream, I can’t
help but re-live the afternoon’s events over and over in my mind. Could I have
done more to help you? Could I have avoided it from happening?
I am exhausted, but peaceful
sleep won’t come for me tonight, my mind was whirring around as I wrestled with
my thoughts, so I find myself here, having crept into your room on tiptoes so
as not to wake you. Peering over your bed and wishing I could tell you how I
feel.
You’re so precious to me my
beautiful boy. I love you more than you will ever know. I wish I could make
things easier for you because the world is just too much for you sometimes.
And today the meltdown fog took
you away from me. I wish it was me in your place. I hate seeing you lost in
yourself like that.
I had seen the fog approaching
you, I wanted to scream to it to leave you alone, please stay here with my son,
and let me make it better for you. I’m your mum and I am here to help you
through it, that’s what mums do.
But I could see the panic in your face as you
struggled to catch your breath. I could see the fear in your eyes as it began
to engulf your body, swallowing you like a predator. I felt so helpless because
deep down I knew this had to happen. Your body was saturated and overloaded
with stress, and it had to come out somehow.
Every nerve in my body was
telling me to scoop you up, but my motherly instincts were so wrong as my very
touch was painful to you, and made you pull away from me all the more. My heart
broke because I felt like I was making things worse. I felt so helpless as the
fear and rage swept over you.
As I watched helpless, I saw my own panic reflected
in your teary eyes, and I didn’t know what to do. I hate feeling like that. It’s
meant to be my job to protect you my beautiful boy.
I tried to tell you it would all
be alright but you couldn’t hear me, the meltdown fog had blurred your senses
and the world around you was gone. I could feel my heartbeat pounding as I
tried to stay calm and keep you safe from yourself.
I know you don’t mean to hurt
anyone when you lash out. It’s not really you, so I take the hit as doors slam
and chairs fly. Time stood still and every second felt like hours while I
watched you lose yourself to the fog. All I could do was let it take its course
which pained me to my core.
And then eventually you became
quiet, you rocked slowly and I knew this was your way of calming yourself,
before you slid down the wall in a heap on the floor. You slowly unravelled every muscle of your
body and there you were.
My beautiful 11 year old little boy; so vulnerable and
raw.
I could feel your whole body sigh as the
exhaustion set in. And I wanted to cry, but I fought the tears back. Holding my
breath I waited for a sign that you were ready for me to enter your world once
more. Your eyes slowly opened and looked at me.
My knees give way and I crawled
towards you reaching out gently to touch your hand.
Your eyes closed at my contact
and I knew you were with me once more. I needed to hug you, to release all my
adrenaline too, as suddenly realised how exhausted I was. So there we lay on
the floor. My hand on yours, I have no idea how long we remained like that. But
that touch was so precious to me that I never wanted it to end.
And as I lay there I realised something. You
never really left me because when you’re swamped in that fog I feel everything
with you. You and I are so in tune that I feel every fear, every anxiety, every
scream and every feeling of pain you inflict on yourself..... I feel it too.
We are so connected you and I
that your pain is my pain.
Do you know you’re not alone my
angel? I know you may not say it, but deep down I know you feel it because with
me you’re truly yourself. It’s safe to unravel when you are with me. And I want
you to know I will be here, no matter how thick the fog gets, I will be there
by your side all the way waiting for you to find you way though.
As I watch you here sleeping in
the darkness my love overflows, and the tears drip down my cheek.
I kiss your forehead and whisper to you how
proud I am of you. I may not be able to stop the fog from coming all the time,
and I can’t make the world a less confusing place for you always, but I know
that it’s going to be OK because I love you to the moon and back, and I am here
for you always right by your side.
And really that’s we need to know.
The future remains uncertain; but
right here right now, all that really matters is us. And we’re in this
together, always and forever.
Goodnight my darling boy, sweet
dreams
Mum x
http://themighty.com/2015/11/what-i-want-my-child-to-know1-when-his-meltdown-is-over/
Read about REST at www.restbygait.com to help your little boy and you conquer those awful meltdowns. Very moving blog.
ReplyDeletemany thanks will
Deletemany thanks will
DeleteWe're part way through a diagnosis I'm not sure will come. I am sobbing reading this, sobbing. Perfect, perfect words. It's not just me. Thank you. Fx
ReplyDeleteHi Felicity good luck with it all , if there is anything I can do at all to help just contact me via my Facebook page, and you're most def not alone x
ReplyDeleteIt sounds like your son has the right mom by his side. What a great message to share and it shows courage to not only do a great job as a mom to a special needs child, but to also be able to share that experience online. It shows you aren't trying to hide the truth about what life with autism is like.
ReplyDeleteBrendon Hudgins @ MedCare Pediatric
Thanks Brendon
Delete